EDUCATIONAL HELPS ...
National Toll-free Numbers
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A publication of the National Dissemination Center
for Children with Disabilities
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NICHCY General Information 5 (GR5)
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January 2005
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Approx. 23 pages when printed.
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PDF version
The following is a selected list of toll-free
numbers for national organizations concerned with
disability and children’s issues. Inclusion on
this list does not imply endorsement by NICHCY or the
Office of Special Education Programs. There are also
many national disability organizations providing
services and information which do not have toll-free
numbers. If you would like additional help in
locating assistance, contact NICHCY at 1.800.695.0285
(Voice/TTY) or visit our Web site (www.nichcy.org),
select "Search for Information," and search
for organizations related to your areas of interest
or concern. Do the same if you find that a phone
number listed on this sheet doesn't work. Contact
information for organizations, of course, is always
changing, while this paper list will not! It was
printed on January 14, 2005.
To help you see at a glance which numbers are
different in this January 2005 edition, we've
marked all new or changed entries with a .
AIDSinfo (formerly AIDS Clinical Trials
Information Services)
1(800) 448-0440 (V; English/Spanish)
1(888) 480-3739 (TTY)
CDC National Prevention Information Network
1(800) 458-5231 (V; English/Spanish)
1(800) 243-7012 (TTY)
CDC National STD and AIDS Hotline
1(800) 342-2437 (V); 1(800) 227-8922
1(800) 344-7432 (V; Spanish)
1(800) 243-7889 (TTY)
Hemophilia and AIDS/HIV Network for
Dissemination of Information
1(800) 424-2634 (V)
HIV/AIDS Treatment Information Service
1(800) 448-0440 (V; English/Spanish)
1(888) 480-3739 (TTY)
National Pediatric & Family HIV Resource
Center
1(800) 362-0071 (V; English/Spanish)
Back to top
American Council for Drug Education (ACDE)
1(800) 488-3784
Families Anonymous
1(800) 736-9805
National Clearinghouse for Alcohol and Drug
Information
1(800) 729-6686 (V); 1(877) 767-8432 (Spanish)
1(800) 487-4889 (TTY)
National Council on Alcoholism & Drug
Dependence
1(800) 622-2255
Back to top
ADA InfoLine—U.S. Department of Justice
1(800) 514-0301 (V, English/Spanish)
1(800) 514-0383 (TTY)
ADA National Access for Public Schools Project
1(800) 893-1225 (V/TTY)
Center for Universal Design
1(800) 647-6777 (V)
Disability & Business Technical Assistance
Centers
1(800) 949-4232 (V/TTY)
Equal Employment Opportunity Commission
1(800) 669-4000 (V; English/Spanish)
1(800) 669-6820 (TTY)
Job Accommodation Network (Jan)
1(800) 526-7234 (V/TTY)
1(800) 232-9675 (V/TTY; ADA Information)
U.S. Access Board
1(800) 872-2253 (V)
1(800) 993-2822 (TTY)
U.S. Department of Housing and Urban
Development—HUD User
1(800) 245-2691 (V)
1(800) 927-7589 (TTY)
Back to top
Abledata
1(800) 227-0216
AbleNet
1(800) 322-0956 (V)
Alliance for Technology Access
1(800) 455-7970
Apple Computers Disability Connection
1(800) 692-7753
IBM Accessibility Center (formerly the Independence
Series Information Center)
1(800) 426-4832 (V); 1(800) 426-4833 (TTY)
National Lekotek Center's Toy Resource
Helpline 
(800) 366-7529; 1(800) 573-4446 (TTY)
TechKnowledge
1(800) 726-9119 (V/TTY)
Back to top
American Council of the Blind
1(800) 424-8666 (V; English/Spanish)
American Foundation for the Blind
1(800) 232-5463 (V)
American Printing House for the Blind
1(800) 223-1839
Blind Children's Center
1(800) 222-3566 (V)
Library Reproduction Service (LRS)
1(800) 255-5002
Lighthouse National Center for Vision and Child
Development
1(800) 829-0500 (V)
1(212) 821-9713 (TTY)
National Association for Parents of Children with
Visual Impairments
1(800) 562-6265
National Library for the Blind and Physically
Handicapped
1(800) 424-8567 (V)
Prevent Blindness America
1(800) 331-2020 (V)
Recording for the Blind and Dyslexic
1(800) 221-4792 (V)
The Foundation Fighting Blindness
1(888) 394-3937 (V)
1(800) 683-5551 (TTY)
Back to top
Burn Survivors Throughout the World 
1(800) 503-8058
Phoenix Society for Burn Survivors
1(800) 888-2876 (V)
Shriners Hospitals for Children
1(800) 237-5055
Back to top
American Cancer Society
1(800) 227-2345
Cancer Information and Counseling Line
1(800) 525-3777 (V)
Cancer Information Service
1(800) 422-6237 (V); 1(800) 332-8615 (TTY)
Candlelighters Childhood Cancer Foundation
1(800) 366-2223 (V)
National Brain Tumor Foundation
1(800) 934-2873 (V; English/Spanish)
National Cancer Information Service
1(800) 422-6237 (V; English/Spanish)
1(800) 332-8615 (TTY)
v
Support for People with Oral and Head and Neck
Cancer 
1(800) 377-0928
Back to top
National Child Abuse Hotline 
1(800) 422-4453
Clearinghouse on Child Abuse and Neglect/Family
Violence Information
1(800) 394-3366 (V)
National Center for Missing and Exploited
Children
1(800) 843-5678 (V)
1(800) 826-7653 (TTY)
Prevent Child Abuse America
1(800) 244-5373
Back to top
Child Care Aware 
1(800) 424-2246
National Child Care Information Center
1(800) 616-2242 (V; English/Spanish)
1(800) 516-2242 (TTY)
National Resource Center for Health and Safety in
Child Care
1(800) 598-5437
Back to top
Communication Aid Manufacturers'
Association
1(800) 441-2262
National Institute on Deafness and Other
Communication Disorders Clearinghouse
1(800) 241-1044 (V); 1(800) 241-1055 (TTY)
National Stuttering Association
1(800) 937-8888
Stuttering Foundation of America
1(800) 992-9392
Back to top
Children's Craniofacial Association
1(800) 535-3643 (V)
Craniofacial Foundation of America
1(800) 418-3223
Faces—National Craniofacial Association
1(800) 332-2373 (V)
Foundation for Nager and Miller Syndromes
1(800) 507-3667 (V)
Back to top
Nineline Crisis Hotline
1(800) 999-9999
National Hopeline Network
1(800) SUICIDE (784-2433)
Back to top
American Society for Deaf Children
1(800) 942-2732 (V/TTY)
Better Hearing Institute
1(800) 327-9355 (V/TTY)
Hear Now
1(800) 648-4327 (V/TTY)
Hearing Aid Helpline
1(800) 521-5247 (V/TTY)
John Tracy Clinic
1(800) 522-4582 (V/TTY; English/Spanish)
1(213) 748-5481 (V; in 213 area)
1(213) 747-2924 (TTY; in 213 area)
National Cued Speech Association
1(800) 459-3529
National Information Clearinghouse on Children Who
are Deaf-Blind (DB-LINK)
1(800) 438-9376 (V); 1(800) 854-7013 (TTY)
National Institute on Deafness and Other
Communication Disorders Clearinghouse
1(800) 241-1044 (V); 1(800) 241-1055 (TTY)
Postsecondary Education Programs Network Resource
Center (PEPNet)
1(888) 684-4695 (V/TTY)
Back to top
Kids on the Block
1(800) 368-5437 (V)
Back to top
American Association for Vocational Instructional
Materials
1(800) 228-4689 (V)
Association for Career & Technical
Education
1(800) 826-9972 (V/TTY)
Association for Childhood Education
International
1(800) 423-3563 (V)
Early Childhood Research Institute on Culturally and
Linguistically Appropriate Services (CLAS)
1(877) 275-3227 (V/TTY)
ERIC System (Educational Resources Information
Center)
1(800) 538-3742
Federal Student Aid Information Center
1(800) 433-3243
1(800) 730-8913 (TTY)
HEATH Resource Center
(for information on post-secondary education for
individuals with disabilities)
1(800) 544-3284 (V/TTY)
National Alliance of Black School Educators
1(800) 221-2654
National Association for the Education of Young
Children (NAEYC)
1(800) 424-2460
National Clearinghouse for English Language
Acquisition & Language Instruction Educational
Programs (NCELA)
1(800) 321-6223
National Clearinghouse for Comprehensive School
Reform (NCCSR)
1(877) 766-4277
National Information Center for Educational
Media
1(800) 926-8328 (V/TTY)
National Institute for Literacy (NIFL)
1(800) 228-8813
1(800) 552-9097 (TTY)
National Library of Education (NLE)
1(800) 424-1616
National Middle School Association
1(800) 528-6672
No Child Left Behind (NCLB)
1(888) 814-6252 (V)
1(800) 437-0833 (TTY)
Also see "Literacy."
Back to top
Education, Career, and Community Program
1(800) 547-6339
Equal Employment Opportunity Commission
1(800) 669-4000 (V; English/Spanish)
1(800) 669-6820 (TTY)
Job Accommodation Network
1(800) 526-7234 (V/TTY)
1(800) 232-9675 (V/TTY; ADA Information)
National Center on Workforce and
Disability/Adult
1(888) 886-9898 (V/TTY)
National Collaborative on Workforce and
Disability/Youth
1(877) 871-4748 (V/TTY)
Back to top
National Foundation for Consumer Credit
1(800) 388-2227 (V)
1(800) 682-9832 (Spanish)
Back to top
Children's Hospice International
1(800) 242-4453 (V/TTY)
Hospice Education Institute (formerly
Hospicelink)
1(800) 331-1620 (V)
Back to top
Abledata (for information on assistive
technology)
1(800) 227-0216 (V/TTY)
Access Eric
1(800) 538-3742 (V)
HRSA Information Center (formerly National Maternal
and Child Health Clearinghouse)
1(888) 275-4772
National Epilepsy Library
1(800) 332-4050
National Health Information Center
1(800) 336-4797
National Dissemination Center for Children with
Disabilities (NICHCY)
1(800) 695-0285 (V/TTY; English/Spanish)
National Lead Information Center
1(800) 424-5323 (English/Spanish)
National Library of Medicine
1(888) 346-3656
Office of Minority Health Resource Center
1(800) 444-6472 (V; English/Spanish)
Zero to Three/National Center for Infants, Toddlers,
and Families
1(800) 899-4301
Also see "Medical / Health Disorders" for
Information Centers addressing specific health
disorders.
Back to top
National Literacy Hotline
1(800) 228-8813
1(800) 552-9097 (TTY)
ProLiteracy Worldwide (formerly Laubach Literacy
International and Literacy Volunteers of
America)
1(888) 528-2224
Reading is Fundamental
1(877) 743-7323
Back to top
American Academy of Allergy, Asthma, and
Immunology 
1(800) 822-2762
American Association of Kidney Patients
1(800) 749-2257 (V)
American Brain Tumor Association
1(800) 886-2282 (V)
American Cancer Society
1(800) 227-2345 (V; English/Spanish)
American Diabetes Association
1(800) 342-2383 (V; English/Spanish)
American Heart Association
1(800) 242-8721 (V; English/Spanish)
American Kidney Fund
1(800) 638-8299 (V)
American Liver Foundation
1(800) 465-4838 (V; English/Spanish)
1(888) 443-7872
American Lung Association
1(800) 586-4872 (V; English/Spanish)
American Stroke Association
1(888) 478-7653 (V)
Aplastic Anemia & MDS International
Foundation
1(800) 747-2820 (V)
Asthma and Allergy Foundation of America
1(800) 727-8462
Celiac Sprue Association
1(877) CSA-4CSA (272-4272)
Chronic Fatigue and Immune Dysfunction Syndrome
Association (CFIDS)
1(800) 442-3437 (V)
Crohn and Colitis Foundation of America
1(800) 932-2423
Cystinosis Foundation
1(800) 392-8458
Epilepsy Foundation
1(800) 332-1000
Family Voices: A National Coalition Speaking for
Children with Special Health Care Needs
1(888) 835-5669 (V)
Foundation for Ichthyosis and Related Skin
Types
1(800) 545-3286
Immune Deficiency Foundation
1(800) 296-4433
International Foundation for Functional
Gastrointestinal Disorders
1(888) 964-2001
Kennedy Krieger Institute
1(888) 554-2080
Leukemia and Lymphoma Society (formerly the Leukemia
Society of America)
1(800) 955-4572 (V)
Lifeline Pilots
1(800) 822-7972
Lupus Foundation of America
1(800) 558-0121 (V)
1(800) 558-0231 (V; Spanish)
Lyme Disease Foundation 
1(800) 644-9737
Malignant Hyperthermia Association 
1(800) 866-Lyme (5963)
National Association of Hospital Hospitality
Houses (Nahhh)
1(800) 542-9730
National Brain Tumor Foundation
1(800) 934-2873 (V; English/Spanish)
National Diabetes Information Clearinghouse
1(800) 860-8747
National Digestive Diseases Information Center
1(800) 891-5389
National Eating Disorders Association (formerly
Eating Disorders Awareness and Prevention)
1(800) 931-2237
National Epilepsy Library
1(800) 332-4050
National Foundation for Transplants
1(800) 489-3863
National Health Information Center
1(800) 336-4797
National Heart, Lung, and Blood Institute
Information Center
1(800) 575-9355 (V; English/Spanish)
National Institute of Arthritis and Musculoskeletal
and Skin Diseases Clearinghouse
1(877) 226-4267 (V)
National Jewish Medical and Research Center 
1(800) 222-5864
National Kidney Foundation
1(800) 622-9010
National Lymphedema Network
1(800) 541-3259
National Patient Travel Helpline 
1(800) 296-1217
Oxalosis & Hyperoxaluria Foundation
1(800) OHF-8699 (643-8699)
Shriners Hospital for Children
1(800) 237-5055 (V)
Sickle Cell Disease Association of America
1(800) 421-8453 (V)
United Ostomy Association
1(800) 826-0826 (V)
Vestibular Disorders Association
1(800) 837-8428
Williams Syndrome Association 
1(800) 806-1871
Also see "Specific Disabilities"
resources.
Back to top
Anxiety Disorders Information,
National Institute of Mental Health
1(888) 826-9438 (English/Spanish)
Mood and Anxiety Disorders Program,
National Institute of Mental Health
1(866) 627-6464
National Alliance for the Mentally Ill
1(800) 950-6264 (V, English/Spanish)
National Association for the Dually Diagnosed
1(800) 331-5362
National Foundation for Depressive Illness
1(800) 239-1265
National Hopeline Network
1(800) Suicide (784-2433) (English/Spanish)
National Institute of Mental Health (NIMH)
Hopeline 
1(800) 784-2433
National Institute of Mental Health (NIMH)
Information Line 
1(866) 615-6464
National Mental Health Association
1(800) 969-6642 (V); 1(800) 433-5959 (TTY)
National Mental Health Consumer Self-Help
Clearinghouse
1(800) 553-4539 (English/Spanish)
National Mental Health Information Center (formerly
Knowledge Exchange Network)
1(800) 789-2647
Back to top
Early Childhood Research Institute on Culturally and
Linguistically Appropriate Services (CLAS) 
1(877) 275-3227 (V/TTY)
Gates Millennium Scholars
1(877) 690-4677
Hispanic Scholarship Fund
1(877) 473-4636
Nacer Sano (March of Dimes Birth Defects
Foundation)
1(888) 663-4637 (English/Spanish)
National Alliance of Black School Educators
1(800) 221-2654
National Clearinghouse for English Langugage
Acquisition (NCELA)
1(800) 321-6223
National Organization for People of Color Against
Suicide
1(866) 899-5317
Office of Minority Health Resource Center
1(800) 444-6472 (V; English/Spanish)
Proyecto Visión Hotline
1(866) Empleo-1 (367-5361)
Back to top
Christopher and Dana Reeve Paralysis Resource
Center
1(800) 539-7309
Courage Center
1(888) 8INTAKE (846-8253)
Craniofacial Foundation of America
1(800) 418-3223
Easter Seals—National Office
1(800) 221-6827 (V); 1(312) 726-4258 (TTY)
Human Growth Foundation
1(800) 451-6434 (V)
Muscular Dystrophy Association
1(800) 572-1717
National Institute of Arthritis and Musculoskeletal
and Skin Diseases Information Clearinghouse
1(877) 226-4267 (V)
National Library Services for the Blind and
Physically Handicapped
1(800) 424-8567 (V)
National Limb Loss Information Center
1(888) 267-5669 (English/Spanish)
National Scoliosis Foundation
1(800) 673-6922 (V)
National Spasmodic Torticollis Association 
1(800) 487-8385
National Spinal Cord Injury Hotline
1(800) 962-9629 (V)
Paralyzed Veterans of America
1(800) 424-8200
Pathways Awareness Foundation
1(800) 955-2445 (V)
Back to top
Genetic Alliance
1(800) 336-4363 (V)
Genetic & Rare Diseases Information Center
1(888) 205-2311
1(888) 205-3223 (TTY)
National Organization for Rare Disorders
(Nord)
1(800) 999-6673 (V/TTY)
Back to top
Adventures in Movement for the Handicapped
1(800) 332-8210 (V)
Best Buddies
1(800) 892-8339 (V)
Girl Scouts of the USA
1(800) 478-7248
National Center on Physical Activity and
Disability
1(800) 900-8086 (V/TTY)
National Lekotek Center's Toy Resource
Helpline
1(800) 366-PLAY (V); 1(800) 573-4446 (TTY)
North American Riding for the Handicapped,
Inc.
1(800) 369-7433 (V)
Back to top
Abledata
1(800) 227-0216 (V/TTY)
ADED: Association for Driver Rehabilitation
Specialists
1(800) 290-2344
National Clearinghouse of Rehabilitation Training
Materials
1(800) 223-5219 (V)
National Rehabilitation Information Center
(NARIC)
1(800) 346-2742
Back to top
American Lung Association
1(800) 586-4872
National Jewish Medical & Research Center
(formerly Lungline)
1(800) 222-5864 (V)
National Heart, Lung, and Blood Institute
Information Center
1(800) 575-9355 (English/Spanish)
Back to top
Arch National Resource Center,
National Respite Locator Service
1(800) 773-5433 (V)
Back to top
Rural Institute on Disabilities
1(800) 732-0323
Back to top
American Association on Mental Retardation
1(800) 424-3688 (outside D.C. area)
(202) 387-1968 (in D.C.)
American Behcet's Disease Association
1(800) 7-BEHCETS (723-42387)
Amyotrophic Lateral Sclerosis Association
(ALSA)
1(800) 782-4747 (for Patients)
Angelman Syndrome Foundation
1(800) 432-6435
Aplastic Anemia & MDS International
Foundation
1(800) 747-2820 (V)
Arthritis Foundation
1(800) 283-7800
Autism Society of America
1(800) 3-Autism (328-8476)
Beckwith Wiedemann Support Network
1(800) 837-2976
Brain Injury Association
1(800) 444-6443 (V)
Center for the Study & Treatment of Usher
Syndrome
1(800) 835-1468 (V/TTY)
Children and Adults with Attention-Deficit/
Hyperactivity Disorder (CHADD)
1(800) 233-4050
(301) 306-7070 (in Washington, DC metro area)
Cleft Palate Foundation
1(800) 242-5338
Cooley’s Anemia Foundation
1(800) 522-7222 (V)
Cornelia de Lange Syndrome Foundation
1(800) 223-8355 (V); (860) 676-8166 (V; in CT)
Crohn's and Colitis Foundation of America
1(800) 932-2423
Cystic Fibrosis Foundation
1(800) 344-4823 (V)
Epilepsy Foundation—National Office
1(800) 332-1000 (V)
Family Empowerment Network: Support for Families
Affected by FAS/E
1(800) 462-5254
Foundation for Ichthyosis & Related Skin
Types
1(800) 545-3286
Huntington's Disease Society of America
1(800) 345-4372
International Dyslexia Association (formerly the
Orton Dyslexia Society)
1(800) 222-3123
International Rett Syndrome Association
1(800) 818-7388
Little People of America
1(888) 572-2001
Lyme Disease Foundation 
1(800) 886-5963
Malignant Hyperthermia Association of the U.S. 
1(800) 986-4287
National Association for the Dually Diagnosed
(NADD)
1(800) 331-5362
National Center for Learning Disabilities
1(888) 575-7373
National Down Syndrome Congress
1(800) 232-6372 (V)
National Down Syndrome Society
1(800) 221-4602 (V; English/Spanish)
National Eating Disorders Association (formerly
Eating Disorders Awareness and Prevention)
1(800) 931-2237
National Fragile X Foundation
1(800) 688-8765 (V)
National Gaucher Foundation
1(800) 428-2437
National Lymphedema Network
1(800) 541-3259
National Marfan Foundation
1(800) 8-Marfan (862-7326)
National Multiple Sclerosis Society
1(800) 344-4867 (V; English/Spanish)
National Neurofibromatosis Foundation
1(800) 323-7938
National Niemann-Pick Disease Foundation
1(877) 287-3672
National Organization for Albinism and
Hypopigmentation
1(800) 473-2310 (V)
National Organization on Fetal Alcohol
Syndrome
1(800) 666-6327
National Reye's Syndrome Foundation
1(800) 233-7393 (V)
National Scoliosis Foundation
1(800) 673-6922 (V)
National Stuttering Association
1(800) 937-8888
National Tay-Sachs & Allied Diseases
Association, Inc.
1(800) 906-8723 (V)
Neurofibromatosis, Inc.
1(800) 942-6825
Nonverbal Learning Disorders Association 
1(800) 570-0217
Osteogenesis Imperfecta Foundation
1(800) 981-2663 (V)
Prader-Willi Syndrome Association
1(800) 926-4797 (V)
Scleroderma Foundation
1(800) 722-4673
Spina Bifida Association of America
1(800) 621-3141 (V; English/Spanish)
Sturge-Weber Foundation
1(800) 627-5482
Stuttering Foundation of America
1(800) 992-9392 (V)
Support Organization for Trisomy 17, 13, and Related
Disorders
1(800) 716-7638
Sudden Infant Death Syndrome Alliance
1(800) 221-7437 (V)
Tuberous Sclerosis Alliance (formerly National
Tuberous Sclerosis Association)
1(800) 225-6872 (V)
United Cerebral Palsy Associations
1(800) 872-5827 (V)
United Leukodystrophy Foundation
1(800) 728-5483 (V)
Williams Syndrome Association 
1(800) 806-1871
Wilson's Disease Association
1(800) 399-0266
Also see resources for "Medical/Health
Disorders."
Back to top
American Foundation for Suicide Prevention
1(888) 333-2377
National Hopeline Network
1(800) SUICIDE (784-2433)
National Organization for People of Color Against
Suicide
1(866) 899-5317
Nineline Crisis Hotline
1(800) 999-9999
See also "Mental Health" resources.
Back to top
Social Security Administration
1(800) 772-1213 (V; English/Spanish)
1(800) 325-0778 (TTY)
Back to top
American Trauma Society
1(800) 556-7890 (V)
1(800) 735-2258 (TTY)
Brain Injury Association
1(800) 444-6443 (V)
National Spinal Cord Injury Association
1(800) 962-9629 (V)
Back to top
Believe in Tomorrow National Children's
Foundation (formerly the Grant-a-Wish
Foundation)
1(800) 933-5470
Sunshine Foundation
1(800) 767-1976
Back to top
This information is copyright
free.
Readers are encouraged to copy and share it, but
please credit the National Dissemination Center for
Children with Disabilities (NICHCY). Please share
your ideas and feedback with our staff.
Publication of this document is made possible through
a Cooperative Agreement between the Academy for
Educational Development and the Office of Special
Education Programs of the U.S. Department of
Education. The contents of this document do not
necessarily reflect the views or policies of the
Department of Education, nor does mention of trade
names, commercial products, or organizations imply
endorsement by the U.S. Government.
NICHCY
P.O. Box 1492
Washington, DC 20013
(800) 695-0285 · v/tty
(202) 884-8441 · fax
nichcy@aed.org
http://www.nichcy.org/
Copyright © 2007 ASGC. All rights reserved. Autism Society of Greater Cleveland P.O. Box 41066, Brecksville, Ohio 44141 (216) 556-4937
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